Links - Personal Pages
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| Amie's Home Page |
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The homepage of Amie Osborn (now Amie Osborn, M.D.) " Reflections on Treacher Collins Syndrome: What matters most is how you see yourself."
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Glenn Whicker Family Page
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http://whick.com/whicker/Glenn99.htm |
The Glenn Whicker Family photograph album.
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Links - Organisations |
Treacher Collins Connection
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http://www.tcconnection.org/ |
Mission: To build a community of people with Treacher Collins syndrome and their families in an environment that transforms people through face to face sharing of stories, surgeries, pictures, heartaches, and love.
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Treacher Collins Foundation |
http://www.treachercollinsfnd.org/ |
The Treacher Collins Foundation is an organization of families, individuals, and professionals who are interested in developing and sharing knowledge and experience about Treacher Collins syndrome and related conditions.
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Ability |
http://www.ability.org.uk/ |
"The Ability Project aim is to show that quality of life is related to how free a person is to make their own choices"
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http://www.cleftline.org/ |
"...Optimizing the quality of life for individuals affected by facial birth defects."
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National Deaf Children's Society |
http://www.ndcs.org.uk/ |
| NDCS is an organisation of parents, families and carers which exists to support parents in enabling their child to maximise their skills and abilities; and works to facilitate this process by every means possible. Its fundamental role is to advocate for parents and carers as and when appropriate, whilst at all times ensuring the child's welfare is paramount.
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The Forest Bookshop |
http://www.forestbooks.com/ |
Mail order specialist in Books, Videos, DVDs and CD-ROMs about Sign Language, Deafness and Deaf Issues.
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TOPSS |
http://www.topss.org.uk/ |
Topss is the employment-led body leading on education, training and workforce development strategy for social care, including social work.
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Links - Directories and Medical Resources |
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http://www.allhealthnet.com/ |
| "We Search the Globe for Medical & Health Information"
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Avera Health Library |
http://www.avera.org/avera/healthinfo/ |
"Here you'll find general information from trustworthy sources about hundreds of health topics."
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Contact a Family |
http://www.cafamily.org.uk/ |
Contact a Family is the only UK charity providing support and advice to parents whatever the medical condition of their child.
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Disability Resources |
http://www.disabilityresources.org/ |
Disability Resources, inc. is a nonprofit organization established to promote and improve awareness, availability and accessibility of information that can help people with disabilities live, learn, love, work and play independently.
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doctorpage.com |
http://www.doctorpage.com/ |
Find a doctor / physician or search for medical information.
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http://www.drgreene.com/ |
"We are dedicated to using information technology to make pediatric wisdom more accessible than ever before. Our goal is to improve children's health by informing and inspiring those who care for them."
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http://www.entific.com/ |
Entific Medical Systems is committed to hearing and facial rehabilitation. We are a rapidly-expanding medical systems company focusing on bone anchored applications based around the principle of osseointegration.
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http://www.faces-cranio.org/ |
For 35 years, FACES: The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth.
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Family Village |
http://www.familyvillage.wisc.edu/ |
"We are a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support."
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http://www.healthy.net/ |
| "HealthWorld Online is your 24-hour health resource center--a virtual health village where you can access information, products, and services to help create your wellness-based lifestyle."
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International Birth Defects Information Systems
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http://www.ibis-birthdefects.org/ |
A world-wide multi-lingual website dedicated to Birth Defects, Genetics and Teratology. Information for patients and professionals.
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http://medlineplus.gov/ |
"MedlinePlus is a goldmine of good health information from the world's largest medical library, the National Library of Medicine."
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US National Library of Medicine |
http://www.nlm.nih.gov/ |
The National Library of Medicine, on the campus of the National Institutes of Health in Bethesda, Maryland, is the world's largest medical library. The Library collects materials and provides information and research services in all areas of biomedicine and health care.
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National Organisation for Rare Disorders |
http://www.rarediseases.org/ |
Read about diseases in NORD's Rare Disease Database. Find an organization in the Organizational Database.
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Patient UK |
http://www.patient.co.uk/ |
The aim of this website is to provide non-medical people in the UK with good quality information about health and disease. UK sites are the primary links in the web directory as they feel that residents
in the UK prefer to obtain health information from UK sources.
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Plastic & Craniofacial Surgery for Children Dallas, Texas |
http://www.kidsplastsurg.com/ |
| The Plastic and Craniofacial Surgery for Infants and Children in Dallas, Texas web site.
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Links - Commercial |
Entific |
http://www.entific.com/ |
Entific Medical Systems is committed to hearing and facial rehabilitation. We are a rapidly-expanding medical systems company focusing on bone anchored applications based around the principle of osseointegration.
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Connevans |
http://www.connevans.com/ |
"There is lots of information around the site, ranging from our full online catalogue, links to the Connevans e-commerce website, www.DeafEquipment.co.uk where you may purchase products online and links with other sites that may be of interest."
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Oticon |
http://www.oticon.com/ |
| "To help people live the life they want with the hearing they have."
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P C Werth |
http://www.pcwerth.co.uk/ |
P.C. Werth is the UK's largest independent technical supplier, looking after the diverse needs of professionals working in the Audiological, Occupational Health, Educational and allied Communication sectors.
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Phonak |
http://www.phonak.com/ |
The Phonak Group specializes in the design, development, production and worldwide distribution of technologically advanced wireless and hearing systems.
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Puretone |
http://www.puretonehearing.com/ |
"We provide to our patients an improved quality of life through enhanced communication & sound business ethics while striving to maintain the highest standards in product knowledge and customer care."
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Starkey |
http://www.starkey.com/ |
Starkey Laboratories is the world’s largest manufacturer of hearing instruments.
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Links - Miscellaneous |
Yahoo TC Group |
http://health.groups.yahoo.com/group/treacher/ |
To exchange feelings, concerns, issues, treatment options, etc. with those who have Treacher Collins Syndrome (TCS) and their families.
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